The Pheo-Para Alliance — A patient-based organization established with assistance from a diversified board including healthcare professionals and others. The Pheo-Para website provides a resource that is designed to help both patients and physicians cut through the maze of information related to neuroendocrine diseases so they can make informed decisions for the treatment of pheochromocytoma and paraganglioma.

Pheochromocytoma — Facts in brief.

Pheochromocytoma Information Group — Information about pheochromocytoma from a privately run patient support group. Well run website that provides up-to-date and well-informed information about pheochromocytoma, geared for supporting individuals both diagnosed with the tumor or in whom the tumor is or has been suspected.

The VHL Family Alliance — Provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL. Local family support chapters exist in regions of the U.S. Local chapter meetings are scheduled periodically. International VHL Support Organizations are established on five continents.

Information from the National Cancer Institute — General information related to treatment, genetics, statistics and clinical trials from the National Cancer Institute (NCI).

Information from the National Organization on Rare Disorders (NORD)

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