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Patient Support Groups
 

Pheochromocytoma Support Board — An on-line support board with over 1600 listed members with a discussion group feature where questions can be addressed and answered. Also provides useful on-line information as supported by the Pheochromocytoma Information Group.

The Von Hippel-Lindau Family Alliance — The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL.

The National Organization for Rare Disorders

Caring for Carcinoid Foundation — The Caring for Carcinoid Foundation (CFCF) is a nonprofit organization dedicated to discovering a cure for carcinoid cancer.

The Carcinoid Cancer Foundation, Inc.— The Carcinoid Cancer Foundation, Inc. is a nonprofit organization chartered by the State of New York in 1968 for the purpose of encouraging, conducting, and supporting research and education on carcinoid tumors and related neuroendocrine tumors (NETs).

National Adrenal Diseases Foundation

Rare Cancer Alliance

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