- The Pheo-Para Alliance
- A patient-based organization established with assistance from a diversified board including healthcare professionals and others. The Pheo-Para website provides a resource that is designed to help both patients and physicians cut through the maze of information related to neuroendocrine diseases so they can make informed decisions for the treatment of pheochromocytoma and paraganglioma.
- A Pheo Para Trooper is someone who is passionate about fighting pheochromocytoma and paraganglioma. Our goal is to empower and support patients while contributing anything we can to finding a cure for these diseases
Pheochromocytoma Support Board
- An on-line support board with over 1600 listed members with a discussion group feature where questions can be addressed and answered.
The Von Hippel-Lindau Family Alliance
- The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL.
- The National Organization for Rare Disorders
- Caring for Carcinoid Foundation
- The Caring for Carcinoid Foundation (CFCF) is a nonprofit organization dedicated to discovering a cure for carcinoid cancer.
The Carcinoid Cancer Foundation, Inc.
- The Carcinoid Cancer Foundation, Inc. is a nonprofit organization chartered by the State of New York in 1968 for the purpose of encouraging, conducting, and supporting research and education on carcinoid tumors and related neuroendocrine tumors (NETs).
- National Adrenal Diseases Foundation
- Rare Cancer Alliance
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