Guidelines for Patient Data Collection and Tumor Procurement:

These guidelines have been compiled by members of the Pheochromocytoma Research Support Organization (PRESSOR), as an adjunct to the PRESSOR Patient Data Collection Sheet, and to set forth suggestions for data collection in prospective research studies about pheochromocytoma.

These guidelines, together with the PRESSOR Patient Data Collection Sheet, are not provided to support any specific single study about pheochromocytoma. Rather, the purpose is to facilitate collaborative research studies among PRESSOR members. The guidelines and the data collection sheet provide suggestions for data collection that may be modified according to individual needs of PRESSOR members. Such data collection may also serve for future use in patient registries and tumor banks.

Acknowledgement: The information fields in the PRESSOR Patient Information Sheet are modeled in part from data collection sheets provided by Drs Dindy Benn, Bruce Robinson, and Anne-Paule Gimenez-Roquueplo of the International SDH consortium.

Download the Pheochromocytoma Research Support Oragnization (PRESSOR) Patient Data Collection Sheet (PDF format - 91KB)